Battling the healthcare bureaucracy occupies too many days.
The hours of a futile day end too quickly yet the clock never seems to change through the night as I wait for hourly employee bureaucrats to return to their offices and phones. Weekends drift through dangling conversations as thick as Spanish moss.
“A Harvard-based study … commissioned by the National MS Society … published in the journal Multiple Sclerosis (1/29/2007) found that many reported …
· high levels of stress and difficulties related to affording health care services and medications.
· spending less on food, heat and other necessities to pay for health care needs
· not filling prescriptions or skipped doses of medicine
· worrying “a lot” about losing or not having health insurance and about whether their health coverage might change.
While I guess statistical solidarity is reassuring, I KNOW that because Patti's cognitive symptoms prevent her from fighting for herself, in 2006 I spent over 1000 hours battling the insurance bureaucracy. From September of 2004 through August of 2005 I logged 2000 hours in my day planner (I’ll do the math for you - that’s a full time job). 2007 is shaping up to be another donnybrook.
Additionally, the care facility era is about teamwork and not all players are as experienced and committed.
Whether “private” or “government” the bureaucracy of health care forces you to get into the mud and fight for everything when you live with a chronic progressive illness. … Why? I believe after two decades that the business of medical insurance would prefer Patti to just go away.
In frustration I often wonder how many bars of “Pontius Pilate Hand Soap” are in bathrooms across the U.S.? … Millions of Americans have retirement plans with stock portfolios of insurance, pharmaceutical, andhealthcare companies. Directly or indirectly they “expect” profits. Who is the bigger part of the problem, stock holders or the hourly employee bureaucrats, just doing their jobs?
As long as our US health care system is driven by profiteering it will never serve any master except profit.