EDSS gauge reflects Kurtzke Expanded Disability Status Scale (EDSS) a method to quantifying disability in Multiple Sclerosis from 0 = normal neurological exam though 10 = death due to MS.
ADL gauge refers to the Modified Barthel Scale to measure performance in basic Activities of Daily Living (ADL) from 100 = independent through 0 = totally dependent on others.
Running on empty might be a fair observation, though it would be both correct and incorrect.
Why should the victories and experiences of those who have progressed beyond independence fade into shadows or become invisible?
Too many stories of people with MS fade away or disappear as MS progression takes away the ability to tell their own story.
Stories do not end with independence they evolve as here in Caregivingly Yours, the caregiver blogs linked on this page and more out in the blogosphere. Those who care … caregiver, carer, spouse caregiver, family caregiver, well spouse, family, friends, aides or whatever become part of their story.
Pictured below are the exact same MS dashboard disability gauges just from a different view.
Caregivingly Yours, Patrick Leer
web site: http://caregivinglyyours.com/
musings: Patrick Ponders ...