Wednesday, January 30, 2008
Thursday, January 24, 2008
Getting it right, dotting the i’s and crossing the t’s, on caregiving related paperwork makes more difference than it should. Transcribing this unique life to forms is frankly impossible yet must be done.
Each caregiver manages and evolves however I do sometimes wonder what if someone had to step in for any reason.
You can compile a library of three ring binders full of records yet how do you really share the trial and error learned experiences, those fragments of memory that click in to place like the snap of a finger.
Immersed in the methodical tediousness of TaxCut and yearly Medicaid revue paperwork, I find myself day dreaming in the random colors of worry. Odd destination for a mental vacation.
J Patrick Leer
Wednesday, January 23, 2008
Eighteen years of caregiving and almost four years of journaling about caregivng has triggered Multiple Blog Disorder (MBD).
Over the last year, National Multiple Sclerosis Society staff has encouraged me to repost my AOL Journal on MySpace, MY caregiving SPACE. It can also be found on Blogger, Caregiving Blog "Caregivingly Yours,". Apparently whatever litmus tests they use demonstrate a wider reader demographic. My own 19 year old daughter likes to remind me that AOL Journals are for old people. <grin>
Caregiving is not exclusive to any age. CaregivinglyYours.com was created to simplify the sharing and the search.
However, believe it or not, I do ponder and do things that are not directly related to caregiving. Stocks split, cells split and eventually I surrendered to Multiple Blog Disorder (MBD). A fragment of ME can now be found in …
You are welcome to visit anywhere anytime.
J Patrick Leer
Saturday, January 19, 2008
'The walker' struggled down the hall, wall-walking as I remember Patti doing so many years ago.
In those early days of Multiple Sclerosis Patti would have to grab anything and everything, most of which were never meant for support.
This walker rumbling with fate at least had the benefit of a railing built to assist walking.
(“Don’t stare, it’s not polite!” What caregiver and/or person in need has not heard that admonishment whispered in a crowd. I believe there is more courage to see in every forward step of 'the walker' than in a field full of athletes.)
At the end of the hall was an emergency exit door. Visually impaired 'the walker' did not notice the change from the bar along the wall to the panic bar to open the door.
As 'the walker' put weight on the door’s panic bar the world exploded. In rushed a frigid January night while emergency exit alarms and lights wailed and strobed.
Staff impressively materialized out of thin air and calm was restored while Patti offered supervisory and non-G rated opinions about the racket.
Sometimes just a few moments of watching life, can almost feel allegorical.
Caregivingly Yours, Patrick Leer
Saturday, January 12, 2008
Yes, that is a live Brahma Bull pictured with Patti and me at this year’s Pennsylvania Farm Show.
Wednesday, January 09, 2008
Cognitive dysfunction? Mental confusion? A neurologist might explain it refers to loss of orientation, the ability to place oneself correctly in the world by time or location.
So what is a sunny, 67 degree day in South Central Pennsylvania on January 8th? (37 degrees is our normal average January high temp) What do you call it when Mother Nature is confused?
It WAS a perfect day to get Patti outside and enjoy some scootering. When personal and natural confusion are in harmony, leave the explanations to the talking heads and simply ENJOY a Spring Day in January.
Wednesday, January 02, 2008
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