Parent caregivers of special needs or chronically ill children, I have long held at the pinnacle of caregiving.
In this morning’s Boston Globe is a story of parent caregiving unraveled. Our US media is only going to report the ‘dramatic’. Who knows how many families succeed daily, but we are not going to read about them.
Yes, I would stereotype a Yale University graduate with both a PhD from MIT and a MD from Harvard Medical School as an academic blueblood. Yet, Robert Sege not only “gets it” but “teaches it”.
"people have real issues with the logistics of life - with transportation, with child care. Life doesn't stop just because you have a chronically ill kid."
Caring for an ill child is no easy job, he said.
"Families with healthy kids and working parents are stressed out as a baseline, and add to that going to multiple doctors' appointments, keeping track, being on time, making a child take a medication they may not want, and sometimes with chemo, the child is uncomfortable. All the chronic diseases of childhood are really difficult for families."
Is anyone listening? Families, friends, neighbors what can you do? In this story fingers get pointed and legal claims may one day assign ‘responsibility’.
From a caregiver’s perspective perhaps the finger should point at all those who never lifted a helping hand.
Caregivingly Yours, J Patrick Leer
website: www.CaregivinglyYours.comvideos: http://www.youtube.com/daddyleer
(also available in Blogger edition, Caregiver Blog: "Caregivingly Yours")