Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
Where better than the ‘sweetest place on earth’ to spend a Spring afternoon?
Joined by “Patti’s Pride” we pushed, rolled, and even walked as part of NMSS Central Pennsylvania Chapter MS Walk 2010 at Hershey, PA.
Pictured from left to right: (back row) Sharon Lanzino, Diana Martlew, Gloria Decker, Dave Decker, Harold Decker, Joan Hamilton, Janis Dean (front row) Patti Leer, Patrick Leer.
Hershey was a new MS Walk location for us as we are always in search of a ‘more accessible’ route. Kudos to the organizers and volunteers!
Most important the day is about having a good time with family, friends, and strangers all coming together for one brief moment in the year over living with Multiple Sclerosis. Hershey MS Walk besides being the ‘sweetest place on earth’ was also a fun and interesting route.
Patti enjoys a Hershey bar and a cigarette with the backdrop of the Hershey Mansion.
Rolling back through ZooAmericaas part of the route was a visual and mental treat.
We gained a most useful new product, “reusable cool neckwear”, modeled by Patti below. Only a week ago in my entry entitled fondue with Uhthoff's Phenomenon, MS heat intolerance dramatically affected our evening. This is a KEEPER!
One of the least talked about relationships in living with MS is parents. I cannot even imagine what it would be like to learn that your adult child that you successfully raised to be a healthy, happy, independent adult has been diagnosed with MS much less watch the decades of progressive decline of abilities back to dependence.
Patti and her parents share a laugh and proud moment over this poster. Zoom in and you will see Patti Leer and her Mom, Gloria Decker both listed among the honor roll. ... Special thanks Liz Follin, Martha Hoover, Lyndee Dean, Barry Lewis, and Bob Decker; you ARE part of this unique and poignant picture.
Above all, thank God for Patti’s brother Dave, Doris, and our daughter Megan for sharing the wheelchair pushing.