Tuesday, September 28, 2010

life expectancy facebook of multiple sclerosis

While Big Medicine offers statistics, in the 21st Century people can communicate a bond of feelings about a shared anxiety of living with Multiple Sclerosis, life expectancy. (from a Facebook comment stream)                 
"my neurologist team are adamant that, while life expectancy is, at the moment anyway, reduced marginally, it will not kill you"
 "at our recent rally in Canada, a list of people who died of MS was read.... You see, people die of MS all of the time, and the complications it causes to long-term health.....if they didn`t have MS …they`d still be alive." 
"are we taking into account the amount of people who have died from taking meds to treat their MS, like Tysabri and now this new drug Fingolimod" 
"suicide and euthanasia rates are exponentially higher in the MS community than in the general population" 
"I was told MS is incurable, it is not fatal" 
"MS can kill, it does happen and we know it does. And it doesn't matter what the play on words is the truth is the primary illness caused the secondary.....and therefore death." 
"you dont die of MS but of complications. Think of it like HIV...no one dies of AIDS but complications from it." 
"I've lost 6 friends to MS already, some under 50, they died because they could no longer breathe or eat, so I think the neuros saying you die from 'complications from MS'... is a point that has always irritated me with neuros." 
"my first neuro said I had Marburg MS. That is a death sentence. … Thank God that neuro was wrong in my case" 
"this is what the MS Society says about life expectancy:"  
Life expectancy is the most understandable question with any incurable diagnosis, neither statistics nor smiley faces will chase the albatross away.

Living with Multiple Sclerosis is the original “it’s complicated” status. Perhaps the touch of family and friends can help tip expectancy from apprehension to hope. Answers are in hearts whether broken, brave, or caring.


Caregivingly Yours, Patrick Leer 
web site: http://caregivinglyyours.com/
videos: http://www.youtube.com/daddyleer 
musings: patrick ponders
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11 comments:

  1. JudyTuesday, September 28, 2010 at 1:51:00 AM EDT

    Yes, MS affects life expectancy, though not just of the patient. There is the impact on the life expectancy of the caregiver. My husband's health has suffered tremendously as a result of the stresses associated with my having MS and his caregiving burden. Now, after his second heart attack, he's the one who really needs caregiving, and I can't give him the care he deserves. Please take care of yourself, Patrick.
    Judy

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  2. bettyTuesday, September 28, 2010 at 11:14:00 AM EDT

    I second what Judy said, Patrick. Do take care of yourself.

    betty

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  3. AnonymousTuesday, January 9, 2018 at 5:33:00 PM EST

    I am a 64 year old female, I was diagnosed of Multiple Sclerosis (MS) in 2008 (MRI), my symptoms started out with severe fatigue, poor balance, numbness, double vision, heat intolerance and anxiety. I was unable to go back to work, I tried Betaseron for about 6 years. Tried every shot available, all made me sick.

    In November 2015, I started on Multiple Sclerosis (MS) Herbal formula from NewLife Clinic, the treatment worked incredibly for my MS condition. I used the NewLife MS Herbal formula for a total time period of 4 months, it totally reversed my Multiple Sclerosis. I had a total decline of all symptoms including vision problems, numbness and others. Sometimes, i totally forget i ever had MS.

    Visit NewLife Clinic web-site ww w. newlifeherbalclinic. com. I am very pleased with this treatment. I eat well, sleep well and exercise regularly. My attitude is extremely positive.

    ReplyDelete
  4. UnknownTuesday, February 20, 2018 at 1:41:00 PM EST

    I was diagnosed with multiple sclerosis 1 month after I turned 50. My Grand-mum was 96 and had it since she was in her 20s. I was on Copaxone, the first year was daily and later I was on 40 mg, 3 times a week. It made a tremendous difference for me. Although the fatigue was what really gets to me. When I do too much, I do start to feel weak.There has been little if any progress in finding a cure or reliable treatment. My multiple sclerosis got significantly worse and unbearable because of my cognitive thinking.. Last year, i started on a natural multiple sclerosis Herbal therapy from Green House Herbal Clinic, i read a lot of positive reviews from patients who used the treatment and i immediately started on it. I had great relief with this herbal treatment. I am doing very much better now, no case of Cognitive thinking or memory Loss,, my multiple sclerosis condition is totally reversed. Visit Green House Herbal Clinic website w ww. greenhouseherbalclinic .com. I am thankful to nature, the medics failed. Share with friends!!

    ReplyDelete
  5. AnonymousMonday, May 28, 2018 at 12:37:00 PM EDT

    (MS) herbal remedy i purchased from Best Health Herbal Centre January this year. I only used it for a month and two weeks, my condition changed automatically, all my symptoms are gone. Remaining positive have helped me during this treatment. Now am living MS FREE.
    Hope this will help somebody, remember, do your own research and make your own decisions based on information you have received and digested. Thanks to Best Health Herbal Centre for their amazing work. Forever Grateful!
    Contact them via w ww .besthealthherbalcentre. com

    ReplyDelete
  6. Jerry AtsonMonday, December 16, 2019 at 2:25:00 AM EST

    My father was diagnosed with amyotrophic lateral sclerosis (ALS) in the summer of 2013; His initial symptoms were quite noticeable. He first experienced weakness in his right arm and his speech and swallowing abilities were profoundly affected. We all did our best to seek help for this disease no medications they prescribe worked ,we were all scared we might lost him due to his condition, as he had been his brother's caregiver a few years earlier for the same disease before he past. doctor recommend nuatural treatment from total cure herbal foundation for his ALS we have no choice to give a try on natural organic treatment ,this herbal cure has effectively reverse my father condition ,losing his balance which led to stumbling and falling stop after the completing the herbal supplement which include his weakness in his right arm and his speech, home remedies from totalcureherbsfoundation com is the best although their service is a little bit expensive but it worth it, they save lives.

    ReplyDelete
  7. UnknownTuesday, January 7, 2020 at 2:36:00 AM EST

    Four years ago, I went numb from the waist down. After quite a few MRI’s, spinal tap, I was diagonsed with Multiple Sclerosis. I was on Avenox for almost 2 years, i had 1 year of monthly steroids IV, had to stop due to hip pain. Through my physiotherapist i learnt about a MULTIPLE SCLEROSIS HERBAL TREATMENT from R.H.G. (Rich Herbal Gardens) and their success rate with the treatment, i immediately started on the MS treatment, i experienced decline in major symptoms including hand tremor, back pain, difficulty walking, muscle paralysis and weakness, uncomfortable tingling and burning, fatigue, urinary retention,double vision, slurred speech difficulty swallowing, numbness. Visit ww w. richherbalgardens.c om. I knew that a positive attitude is everything and to just believe, I’m in control of my life again….

    ReplyDelete
  8. UnknownTuesday, March 24, 2020 at 6:49:00 AM EDT

    After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, i learnt about RICH HERBAL GARDENS and their Multiple Sclerosis alternative treatment ww w. richherberbalgardens. com the Multiple Sclerosis treatment made a great difference, most of my symptoms including tremors, weakness and others gradually disappeared. I improved greatly over the 4 months treatment, its been a year since the treatment, i have no symptoms. I have a very good quality of life and a great family!

    ReplyDelete
  9. LupitabrasilFriday, November 6, 2020 at 2:35:00 PM EST

    I am very glad I came across this post and stopped to read it from beginning to end, as it left on a very positive note. I was in the beginning of my own journey with MS and the depression it's was giving me was unbearable , I found some encouragement from several blogs and last year in seeing Rochelle make her personal goals after overcoming the disease with natural medicine I have to tried it also .I’ve kind of resigned to the fact that this is how life will be for me back until I found herbs that stop this multiple sclerosis easily and relief all the Fatigue and other symptoms I was experiencing ,I’m passing this info to anyone at there because multivitamincare org has the right cure and caregiver to this disease ….I took various supplements, medicine prescribed by neurologist,massage and physiotherapy still the disease is was progressing very fast until the the MS formula from that caregiver .

    ReplyDelete
  10. AnonymousMonday, January 4, 2021 at 4:09:00 AM EST

    I was diagnosed with Multiple Sclerosis (MS) in October 2011, at the age of 44. I woke up one morning with numbness in my lower back and legs, I couldn't feel my feet touching the floor. I saw my doctor and had an MRI to see if I had a disc problem, it was negative and she told me she feared MS. I was sent to a neurologist, had two more MRIs, and was told that night that I have four lesions on my spine MS. I tried every shots available but nothing worked. In 2015, my neurologist and I decided to go with natural treatment and was introduced to Mayaka Natural Clinic natural organic MS Herbal formula, i had a total decline of symptoms with this treatment, the numbness, terrible back pains, stiffness, body weakness, double vision, depression and others has subsided. Visit Mayaka Natural Clinic official website www. mayakanaturalclinic. com This treatment is a breakthrough for all suffering from Multiple sclerosis, i am strong again!

    ReplyDelete
  11. Daniel LanTuesday, March 2, 2021 at 2:25:00 AM EST

    Been diagnosed with multiple sclerosis in 2015, and I was a woman of 50. They put me on Rebif which I took until 2017 and was switched to Copaxone. I had two relapses on Rebif, none so far on Copaxone. I do notice my balance was getting worse, and my memory, as well as erectile dysfunction and spasms’ had no choice to sick for other solution and I was introduce to multivitamincare .org which I purchase the MS herbal formula from the org, the herbal supplement has successfully  get rid of my multiple sclerosis and reversed all symptoms after using the herbs as the Dr said , this is almost a miracle and do believe multivitamincare.org herbal cure will be recognize globally because am sure the world are yet to see their wonderful work.

    ReplyDelete

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