“What I mean is that everything around here is breaking! …… plans were heaped on the trash pile once I stopped working, along with so many other things. … … that has to go on the ‘must do’ list. Each time something goes on that list, something from the ‘want to’ list suffers … … I so wanted to start on the ‘want to’ list, but that keeps fading more and more into the background. I think with MS and disability, that must happen a lot.”
Friday, June 10, 2011
once we were yuppies
Sometimes voices from the blogosphere get stuck in my head or maybe they’re hallucinations from mowing the lawn at 100°F (37.8°C).
As a caregiver, I live in the world altered by Multiple Sclerosis but I must also live and work in the upwardly mobile world.
I stand with a foot on each side of a widening chasm, one moment I may be trying to share the excitement of someone’s upcoming able-bodied vacation plans, then only hours later trying to find anyone to share or even grasp my excitement over a successful one person transfer of Patti from wheelchair to bed.
Once we had two incomes and yes with two cats in the yard our house was a “very, very, very fine house”.
This entry from a blogger with MS has stuck in my mind for almost a month. I suspect it captures a universal truth.
"Disability is part of the human condition," says Margaret Chan, director-general of the World Health Organization. "Almost every one of us will be permanently or temporarily disabled at some point in life. We must do more to break the barriers which segregate people with disabilities, in many cases forcing them to the margins of society."
Caregivingly Yours, Patrick Leer
web site: caregivinglyyours.com
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