Saturday, December 03, 2011
losing my mojo / MS caregiver
Putting up this year’s Christmas decorations I was struck by how much I’ve lost my mojo through 22 years of Multiple Sclerosis spouse caregiving.
Medical science monitors progression of an illness or disability but ignores that the family also progresses. Then again how do you measure downward economic and social mobility? How do you measure a childhood sacrificed? How do you measure the physical and emotional toll of choice? How can you even explain it when you put ‘care’ before all the other understandable motives such as life, liberty, and the pursuit of the happiness of career, income, and all the trappings of normal life? … How do you measure the loss of a caregiver’s mojo?
The following 20 second video captures what our yard looked like at Christmas time in the earliest years of juggling MS caregiving and basically single parenting.
Believe it or not that’s even scaled down from my pre MS caregiving lawn decorations. Whether you are a fan of excessive Christmas decorations or not, what is important is it was ‘me’ – I enjoyed it I - my mojo was running on full throttle.
Pictured below is now – two decades later …
While my blow mold plastic may be considered vintage to some, I’m quite sure I’m hearing polyethylene whispers about losing my mojo.
Caregivingly Yours, Patrick Leer
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