Wednesday, January 04, 2012
Despite MS, to Spite MS
How unique is this book? In the forward Jennifer Digman shares her research that there are 2,100 books on Multiple Sclerosis but only 5 about Multiple Sclerosis love stories.
How unique was reading this book? Because of MS symptoms Patti cannot read nor can she remember in the short term which in turn affects attention span. Reading it to her pieces of chapters at a time over the holidays was beyond interesting, at times outside my imagination.
At one moment I’m reading to Patti about Dan Digman who transfers his wife Jennifer from her wheelchair with the same one person unassisted transfer as I use for Patti except the guy has MS. Not only has MS but runs an 8K race in 43 minutes – damn, this guy is in far better shape than me and I do not have MS.
While Patti, who does have MS, makes skeptical sounds about a think positive snippet in one breath, laughs along with Jennifer’s take on something from their shared wheelchair view perspective in the next breath, and then abruptly decides she just wants to go to bed. MS attention span can be dizzying to deal with.
Spacing chapters are haiku poems by Judy Williams who also has MS. These capture Patti’s attention causing spontaneous comments and observations, a couple times leaving me to see the poem differently.
If ever I doubted it, this experience of reading “Despite MS, to Spite MS” with Patti has proven that Multiple Sclerosis is less a diagnosis and more a collection of Multiple Stories.
And, Now, We Pause for a Brief Commercial Message . . . Click “Despite MS, to Spite MS” to order. A portion of the proceeds will benefit the National Multiple Sclerosis Society and Camp Courageous.
Caregivingly Yours, Patrick Leer
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