Wednesday, May 30, 2012

Multiple Sclerosis, Palliative Care, Hospice and Dying

Talking with your Multiple Sclerosis Patient about difficult topics: palliative care, hospice and dying
Talking about difficult MS topics - Palliative Care, Hospice, and Dying from the National Multiple Sclerosis Society (2009).
"At whatever point during the disease course you find yourself caring for a person with MS … we feel certain they will benefit from the opening of this door to discussion at some point in their illness."

Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @


  1. not sure if there should have been something more with this Patrick, but I have to say unfortunately it is a fact of life that we are all born to die literally. I think we all need to have these discussions about end of life no matter what disease or illness we might be diagnosed with or contract or whatever. And I think the earliest the discussions the better. We are in 'perfect' health but we have had discussions, especially after the events that took place with his parents' passing (especially his mom's) I really think it so imperative to have discussions, plans and then follow through (sadly) when the time comes. Something I'm very passionate about, being realistic about the inevitable no matter how sad it is to deal with......


    1. Thanks Betty for the heads up about the document not coming through. (PDF, Google Doc., it's all Greek to me. I was trying something above my skill level.) I think for us it was the media hype over Terri Schiavo that got us talking about end of life decisions and paperwork, which frankly I am soooo glad we did before Patti's cognitive health dramatically declined.

  2. Sometimes a frightening subject, but one that must be known. Ironically, I have an ongoing draft on this subject. I add to it, mentally and physically, when I feel up to it. I guess I need to post it.
    Thanks for all the info -- I'll print it out and put it with my "affairs in order" envelope.


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