Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
have shared with us that, “The Lord works in mysterious ways” enough times over
the 27 years since Patti was first diagnosed with Multiple Sclerosis to
probably qualify for an entry in the Guinness Book of Records.
‘mysterious ways’ challenge faith. As the spouse caregiver, watching Patti
decline over nearly a quarter century (and over a three year period burying my
father, mother, and only brother) I've certainly had, have, and will have
contentious streaks in my relationship with God, fortunately always staying
just beyond the ‘smite with lightning bolt’ threshold.
believes my faith matters, so allow me to pull back a curtain. My paternal
great grandparents, including the original “Patrick Leer”, who I am named after
were immigrants from Ireland and my bedrock is Irish Catholic.
ago wanting to have our daughter baptized Catholic we were told our marriage
would first have to be validated. Patti’s Lutheran baptism and our marriage
outdoors by an ordained Lutheran minister were unacceptable to Rome.
though Patti desired to convert, once a wheelchair was required it became a
game changer for accessibility. Frankly juggling spouse caregiving and
basically single parenting was more important.
ago, taking Patti out for lunch I was reminded by her care facility staff to
have her back by 1:30 PM for her “Catholic thing”.
“Catholic thing” would be the Feast of St. Blaisé, “through the intercession of
Saint Blaisé may God deliver you from the ailments of the throat and from every
how often choking has nearly killed Patti, invoking the intercession of St. Blaisé
is not a bad idea with Multiple Sclerosis dysphagia.
therapists treat dysphagia but come on now they lack the whole cool looking
crossed candle ritual and after yesterday’s cosmic coincidence, maybe just
maybe we all need a little more than therapy.
is rooted in the “Golden Rule” universal to ALL religions. ----------
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