Showing posts with label bee venom therapy. Show all posts
Showing posts with label bee venom therapy. Show all posts

Thursday, April 25, 2013

never ever ever stop fighting

Never, ever, ever assume that Patti’s 23+ years of Multiple Sclerosis progression were without a daily fight.


Patti, her parents, and Megan and I joined her in a tooth and nail decades long battle to slow Multiple Sclerosis.
Our 'able bodied' family last pictured just days before Patti woke up Thanksgiving Morning 1989, unable to walk and barely able to see or talk.

Again thanks to multiplesclerosis.net for inviting me to share longer versions of our story of living with MS as a family.

Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/


Tuesday, January 10, 2012

where sheep wear spandex / an MS outing


Whether care giving or needing care sometimes the best thing you can do is just go have some fun.

Laughing while spandex wearing sheep tried to eat Patti’s wheelchair we began our visit to the 2012 Pennsylvania Farm Show.

With 24 accessible acres(approximately 24 football fields) under roof, I cannot think of a more wheelchair friendly outing for January. (and excellent pushing and walking exercise for me) 

Enjoying two creamy chocolate milk shakes from PA Dairyman’s Association in search of the butter sculpture we decided to watch some honeybees in a glass observation hive at an exhibit by PA Beekeepers Association. Soon we found ourselves in a conversation with a beekeeper about bee stings and medicine. While most visitors took a step back from the weird people talking about stinging themselves, several lingered, listened, and asked questions in a spontaneous discussion about Patti’s eventually unsuccessful two years of Bee Venom Therapy for Multiple Sclerosis and the beekeeper who had found genuine success for his Rheumatoid Arthritis through apiatherapy.

It’s hard to miss 1,000 lbs (454 kg) of butter and we eventually found the sculpture. After the week long farm show the sculpture is given to a selected dairy farm where it is converted into electricity.

After a couple hours of checking out and often visiting up close and personal certainly every farm animal and crop in our imagination – well, we were hungry … hey, the theme was “from the farm gate to the dinner plate.”

Heading to the food court area we decided on Lamb Stew from PA Livestock Association with frozen maple yogurt topped with maple syrup for dessert from PA Maple Syrup Producers.

Lamb stew and frozen yogurt could not have been more dysphagia friendly and feeding Patti was no problem in the crowd of humanity, over 50,000 attend each day. Most people are shoving one thing or another in each other’s mouth anyway under the ‘try this’ principle of fine farm show dining.

Happy and fed Patti was ready for a long winter’s nap.

Fortunately between MS fatigue and her memory loss she would not have to fret about counting spandex clad sheep. 

Caregivingly Yours, Patrick Leer 

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