We are not fundraising gurus, just one family living with Multiple Sclerosis for a little over 20 years.
MS Walk or Walk MS, has become the flagship event both for fundraising and Multiple Sclerosis awareness in most communities.
On a best of possible MS Walk days we find ourselves enjoying several hours among others like us and unlike us, such is Multiple Sclerosis.
In the early years, hope burned like a wildfire consuming everything. Fighting MS was all that mattered.
As the years rolled by, that fire of hope continues to burn just more focused. “Living with MS” and quality of life now dominate.
Likewise “why fundraising” shifts with each person living with MS. For many it is about research for a cure. For many it is about help with getting through the day.
There are both reasons to help and excuses in the best of times and the worst of times. While there are valid questions about charitable fundraising, in general, waterboarding munchkin sized peddlers of Girl Scout cookies is hardly necessary. … and yes there a many causes competing for help.
What I do know is that for a few hours on one day a year we can participate in something where ‘living with Multiple Sclerosis’ is not the exception. Plus Patti’s freedom of mobility, our wheelchair accessible van, has benefited from MS fundraising.
We invite you to join us on April 18th at Hershey, PA. Clicking the link below opens “Patti’s Pride” team page, where you can visit her team, join and/or donate.
http://main.nationalmssociety.org/goto/pattileer
If not here, you can still form or join a team, be an individual walker, find someone to sponsor, or simply volunteer to help with a Walk in your own community.
In USA locate a chapter
In Canada please consult Division home pages
SVP voir les pages web des Divisions
MS Walk: why we PUSH, ROLL and even WALK (30 sec)
Caregivingly Yours, Patrick Leer
web site: http://caregivinglyyours.com/
videos: http://www.youtube.com/daddyleer
Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
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- timeline of health care law changes
- I discovered the Internet and Multiple Sclerosis
- one-person transfer technique, the hug
- knee contractures Multiple Sclerosis
- beware psychiatrists bearing laxatives
- MS Walk: why we PUSH, ROLL and even WALK
- wheelchair accessible trails / Wildwood Park
- Multiple Sclerosis Center of Excellence
- pulling your hair out and smiling at the same time
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