Saturday, July 10, 2010
hope, liberation, and CCSVI
After and more years of caregiving and living with Multiple Sclerosis it no longer surprises me when people approach us either as living encyclopedias of MS or to share MS news.
Currently it is all about Chronic Cerebrospinal Venous Insufficiency (CCSVI) and/or Liberation Treatment.
Yes hope of a new hypothesis on MS and treatment options has been loud.
Oversimplified CCSVI is about compromised blood flow in the veins draining the central nervous system. Liberation Treatment is about endovascular surgery to improve blood flow.
Paolo Zamboni, MD, Professor of Surgery,
looked beyond neurology for answers when his wife was diagnosed with MS. Improving blood flow reduced MS symptoms. Simply as a caregiver Paola earns a point from me. University of Ferrara, Italy
Canadian TV heralded “The Liberation Treatment: A whole new approach to MS” in Fall 2009, click to watch on line.
As for us …
“Zamboni emphasizes that the Liberation Treatment does not make people in wheelchairs walk again.”
Talk about a deal breaker!
Plus my Mother, decades ago, chose to have carotid artery surgery to restore proper blood flow. Though risk was “rare”, she suffered a massive stroke in post op. “CCSVI is an invasive procedure … risk for significant complication”.
You are your experiences.
When a wheelchair first became part of living with MS, Patti accompanied by her parents traveled to Germany for treatment. Hans Nieper, MD (1928-1998) offered an orthomolecular treatment for MS. She left the US in a wheelchair and surprised both Megan and me at the airport when she returned walking. … After spectacular early results, unfortunately in 2 years MS was again winning.
I wish for all those trying Liberation Treatment that it works.
In spite of the attention I was surprised one has to turn to medical tourism, but there it was, “CCSVI, Liberation Package … No Wait, All-Inclusive Fees in
… from anywhere upwards of $6,000 … (additional costs) airfare and post-treatment 3 day hotel stay”. You can almost imagine a voice over by the late Billy Mays. India
Hurdles belong on a track not in the way of hope.
Caregivingly Yours, Patrick Leer
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