Sunday, December 26, 2010
If wishes are challenges ...
If wishes are challenges … then this must be Christmas
Our wheelchair van failed us on Christmas Eve. So it was back to the old days and old ways of transferring to and from wheelchair to vehicle, except progression of Multiple Sclerosis symptoms had erased Patti’s old days abilities to assist in transferring.
Vehicle transfers unlike a pivot transfer (one-person transfer technique, the hug) from wheelchair to bed necessitate a contortionist extension of a caregiver’s / carer’s back into the vehicle.
Toss on top of holiday amplified Multiple Sclerosis symptoms the stress and confusion of being twisted, pushed, and pulled in and out of a vehicle unlike Patti has experienced in years and the best present of all was that our journey into Christmas past ended without a fall through a total of eleven transfers.
Today Patti’s needs of daily living are supported by fresh shifts of staff and lifts while I try to stretch myself back into something resembling an erect standing person and our wheelchair van waits in a repair shop lot. Should a Christmas entry feel like a battle casualty report?
For most Christmas is and should be about enjoying dreams of dancing sugar plums followed by a frenzy of tearing open presents. … For others well it can be somewhat different.
- A layoff, an illness or a death in the family can change everything. People spending Christmas at this emergency shelter never imagined this would be their Christmas. Strangers band together to celebrate the holidays
- When surgery prevented a caregiver parent from carrying their 75 lb child with cerebral palsy up 14 stairs to his bedroom, a high school student athlete volunteered his time, arms, back and heart. A simple act elevates all
Like reading tea leaves, may we all see hope in the litter of Christmas wrappings.
… And so this is Christmas
For weak and for strong
For rich and the poor ones
The road is so long
A very merry Christmas
And a happy New Year
Let's hope it's a good one
Without any fear …
John Lennon and Yoko Ono, 1971
Caregivingly Yours, Patrick Leer
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- If wishes are challenges ...
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- 167 year old humbug
- snow falling and a bag of candy
- holiday caregiving: visiting long term care
- holiday caregiving tips: the abilene paradox
- winter caregiving tips: wheelchair outings
- repairing Multiple Sclerosis damage
- caregiver or carer
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