Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
it’s the combination of reading other Multiple Sclerosis related blogs and the dawn
of the 23rd year of our own story of living with MS but my heart
Guns N’ Roses was right, “... Nothin' lasts forever … and it's hard to hold a
candle in the cold November rain …”
all seem like such youngens either chronologically or in terms of MS progression.
I pray they all can stay forever young, stay forever mild. It sure doesn’t get
as long as I can still push a wheelchair and the first snow falls it was time
to get Patti out for a push and roll through the park adjacent to her care
dementia symptoms are such cunning thieves. Patti enjoys the ‘now’ of the push
and roll but she quickly forgets as she remembers her longer ago pre-MS times
was home for dinner and back to my ongoing project to extend Patti’s self-feeding
for as long as possible. Thanksgiving and Thanksgiving left overs are not exactly
dysphagia friendly food and require me or someone to feed Patti along with
other with the flick of a switch our gas fireplace leaps to life as I hand Patti
a bowl she can self-feed with cut up MorningStar Farms vegetarian buffalo wings,
cut up mango spears, and grapes to enjoy in front of a fire after a push and
roll through the season’s first snow. One way or another we all live 'in the now', some of us just remember it.