By Patrick
Leer for MultipleSclerosis.net
Scaring
or depressing the newly diagnosed or those with mild MS is not my intent but on
the other hand living with severe MS as a family can no longer be brushed under the rug.
My wife's quarter century imprisoned in her malfunctioning body by MS has meaning, as does her wish 'what if' something happened to me? Patti never ever ever ever wanted our daughter to sacrifice her young life as her caregiver
I wonder
if sometimes the fear of tomorrow is not more about concerns over family
support and involvement as much as MS symptom progression.
"How did you know when it was time for Patti to move to a care facility?" My thanks to MultipleSclerosis.net for sharing our longer stories.
"How did you know when it was time for Patti to move to a care facility?" My thanks to MultipleSclerosis.net for sharing our longer stories.
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
care facility multiple sclerosis caregiving
Had Tiffiny in one at the beginning, never again. They almost killed her.
ReplyDeleteThanks Charles. In the years I have been blogging about the care facility era I have received multiple emails from family and friends about the care of their loved one with MS in one long term care facility or another. 'Boots on the ground' advocacy becomes critical. Your loved one gets out of facility care what you put into it.
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