Wednesday, April 03, 2013

what if? ... Multiple Sclerosis care facility era

Multiple Sclerosis affects each person so differently, I honestly do hesitate to share our story sometimes.

WHAT IF…THE CARE FACILITY ERA
By Patrick Leer for MultipleSclerosis.net

Scaring or depressing the newly diagnosed or those with mild MS is not my intent but on the other hand living with severe MS as a family can no longer be brushed under the rug.

My wife's quarter century imprisoned in her malfunctioning body by MS has meaning, as does her wish 'what if' something happened to me? Patti never ever ever ever wanted our daughter to sacrifice her young life as her caregiver 

I wonder if sometimes the fear of tomorrow is not more about concerns over family support and involvement as much as MS symptom progression. 

 "How did you know when it was time for Patti to move to a care facility?" My thanks to MultipleSclerosis.net for sharing our longer stories.

Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/


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2 comments:

  1. UnknownWednesday, April 3, 2013 at 3:07:00 PM EDT

    Had Tiffiny in one at the beginning, never again. They almost killed her.

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    Replies
    1. UnknownWednesday, April 3, 2013 at 6:44:00 PM EDT

      Thanks Charles. In the years I have been blogging about the care facility era I have received multiple emails from family and friends about the care of their loved one with MS in one long term care facility or another. 'Boots on the ground' advocacy becomes critical. Your loved one gets out of facility care what you put into it.

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