Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
or depressing the newly diagnosed or those with mild MS is not my intent but on
the other hand living with severe MS as a family can no longer be brushed under the rug.
My wife's quarter century imprisoned in her malfunctioning body by MS has meaning, as does her wish 'what if' something happened to me? Patti never ever ever ever wanted our daughter to sacrifice her young life as her caregiver
if sometimes the fear of tomorrow is not more about concerns over family
support and involvement as much as MS symptom progression. "How did you know when it was time for Patti to move to a care facility?" My
thanks to MultipleSclerosis.netfor sharing our longer stories.