Sometime yesterday this journal’s hit counter moved past the “this journal has been read 20,000 times” mark. I am overwhelmed.
I can still vividly remember the loneliness when spouse caregiving and ‘basically’ single parenting began. Information was slim to none. All I found was “Mainstay: For the Well Spouse of the Chronically Ill” by Maggie Strong, and spent hours in our local library searching the New England Journal of Medicine, often with Megan sleeping in her stroller.
Al Gore discovered the Internet and I stumbled into the Multiple Sclerosis bulletin boards on Prodigy. Is there anyone old enough to remember the Prodigy sign on screen? Or having to use DOS prompts to open Windows?
This 21st Century is an information age second to none. Yet nestled in all that information are real stories of real people, more like a neighborhood than a database. As a caregiver that is what I needed and why I share.
… and while pausing to reflect on numbers, I am also grateful for the response to our drifting into You Tube to share our story and information. Driving around for over a year now in our wheelchair accessible van only two families with a member in a wheelchair have had the chance or time in parking lots to ask to see how our van works. Yet through You Tube, in three months, over 1000 have taken the opportunity while viewing “Living with MS: wheelchair van”.
Thank you for caring. You all are wonderful 'neighbors'.
Caregivingly Yours, Patrick Leer