Tuesday, June 19, 2012
when a parent has multiple sclerosis
“Because life did not give me a manual when it gave my Mom MS” … This banner from a blog entitled MS Recess captured my attention as I began reading the thoughts and experiences of a young woman sharing the changes to a family.
Not only is it powerful but rather unique in that her Mom was diagnosed relatively recently, 3 years ago, and at a later age of 56. So the entire family dynamic is almost two decades older than ours at the geneses of living with Multiple Sclerosis.
The blog author was 25 when MS joined their family; our daughter was 18 months when Patti was hospitalized with her first MS exacerbation 22 years ago.
Our daughter has never known her Mom as an able bodied person.
The blog author refers to her Mom as a best friend and how hard it is to watch the changes.
The blogosphere can offer limitless views of living with Multiple Sclerosis. Yet no mirror in the universe reflects quite like children (of any age) and not enough is heard from them.
I encourage you to drop in for some MS Recess …
Caregivingly Yours, Patrick Leer
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