Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
abnormally Multiple Sclerosis unfriendly hot summer has kept ‘outings’ from Patti’s care facility
indoors and while trying to make the best of the situation has in part driven my
recent experiments with caring and the culinary arts.
I have been reinvigorated to rejoin the teamwork involved in feeding Patti at
her care facility, increasing my visits during dinner and help with feeding. Which by the way are never boring. Just last night Patti practically jumped out of her chair when startled by a spoonful of jiggling jello. "That (blankety-blank) was wobbling right in front of my face. It startled me!" Now laughing and trying to feed her, believe me that jello was doing a whole lot more jiggling.
line it’s been a refresher course in Patti’s abilities or lack thereof. Which
raised the question – was finger food as a function of adaptive self-feeding really
ever given much consideration in developing Patti’s care plan?
was thrilled to learn that both occupational therapy and speech therapy staff have
decided to reevaluate Patti and depending, possibly start to work with Patti
again on adaptive self-feeding, in particular finger-food.
with the therapists was a treat and sharing my experiments on visits at home on
caring and the culinary arts and my conclusions is what the teamwork of the
care facility is all about.
Eating must be first and foremost safe with Patti's level of MS progression regardless of who is preparing her meal and feeding her. Evaluating and testing an ability and an idea is critical. As any long term caregiver knows there are endless ‘tricks
of the trade’ that work just fine one-on-one for you but often do not