Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
Dear Santa, please send a cure for Multiple Sclerosis
other night we watched a TV commercial for some speech software as a young woman gushed on about how it changed her life as she could
now type while driving, walking, etc. just by talking.
young spokesperson had no noticeable disabilities except lack of time in her
exciting life to type.
she was even born by the dawn of such speech technology for people with
disabilities. From Microsoft to Verizon those early geeks could not have been
more patient if not even fascinated with Patti’s Multiple Sclerosis speech that
absolutely baffled the earliest software.
they may the spawn of Gates and Jobs just never have kept the promises of Hanna-Barbera,
or Gene Roddenberry when it comes to the technology we all were ‘promised’ in
the future. Where are our robot maids or
aerocars of the Jetsons? I still step
outside once a day, open my flip phone and when no one is looking whisper "Beam
me up, Scotty" … but I’ve never been transported. Instead we are inundated by gadgets while not a single disease has been cured since polio in the mid 1950's.
Please bring a cure for Multiple Sclerosis
for Christmas. My wife’s physical and cognitive progression only increases and now
I have lung cancer. We have never asked before in 23 Christmases living with
MS, either we were too busy being parents or praying for someone else. We are running out of time. Time is neither our friend nor that of any
family living with MS
Pharma does not want to cure anything, time is profit to them.
year the bad elves at NASA ‘punked’ Mars by spending a zillion dollars to send a state of the art computer/lawnmower. Maybe you
could simply swing by and pick it up. Put it under someone’s tree to start
working on a cure for MS.
of those bad elves at NASA Santa, whatever happened to jet packs? I saw James
Bond and Will Robinson using them in the 60’s.
you can’t grant every wish, but if you can’t send a cure for MS for this Christmas could
you find two jet packs for us. Hovering around together would be so cool
compared to the over 5,000 miles (8,000 kilometers) of push and rolls through the