“With the economy the way it is, and how things are going in the world today, we wanted to give back to our community.” … “Everything is free”
Christmas by the Lake at Children’s Lake in Boiling Springs, PA felt like falling into a
Currier & Ives lithograph when members of a ‘town band’ arrived to play
holiday music and a high school choir to sing Christmas carols. … all that was
needed was snow!
Of
course in our story everything revolves around Multiple Sclerosis.
MS
related dysphagia restricts even a free menu of hot chocolate, coffee, hot dogs,
homemade cookies, pumpkin bread and chestnuts roasted on an open fire. However
with some teamwork and verbal cues we were able to enjoy hot chocolate and homemade
cookies. I suspect I enjoyed the roasted chestnuts more than Patti. Ohhh how I once
loved bags of roasted chestnuts on the streets of NY.
You may
notice the mittens pictured on Patti. Chronic fidgeting has been, and is, one
of the more frustrating of her MS cognitive symptoms. This long ago torpedoed
the catheter era and continues to confound transporting her when she repeatedly
disconnects her seat belt while I am driving and need to stop to reconnect.
Wearing
her mittens usually keeps her from manipulating most objects and endlessly putting
the mittens on and off it seems to satisfy her fidgeting.
Though having mittens on this balmy sunset, 48°F (8.9°C), was fortuitous as they were ideal for
holding the hot chestnuts until they cooled enough to eat and for holding the
pictured luminary for a creative photo op.
Accessibility
in general can be a challenge especially after dark. Fortunately any time a
town closes streets to traffic for a community event it exponentially increases
its accessibility rating.
Did I
mention “free” horse drawn carriage rides? Probably not, MS fatigue eventually
trumps all … sooner than later all Patti really wanted to do was go to sleep.
Patrick Leer
BLOGS:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
multiple sclerosis caregiving care giving
Looked like a fun evening!! I like too that it was a free fun event!!!
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