Tuesday, March 06, 2007

Caregiving: MS Awareness Week (alternative 1)

While the NMSS is proud of their new advertising agency Wieden & Kennedy; I personally am left wondering if able bodied, able minded marketing firms ever really grasp what “living with MS” is really like. 


I read that Wieden & Kennedy (clients include Coca-Cola, Nike, Starbucks) worked pro bono designing the “Join The Movement” campaign. Kudos to their altruism!


We on the other hand live with Multiple Sclerosis in a near parallel universe to the media image. So I’ll do my best to offer an alternative ‘Real’ MS Awareness Week of “living with Multiple Sclerosis”.


Currently I am beginning the third month of trying to stabilize Patti’s private prescription plan coverage. This happens every year with insurance carriers both private and government seizing year end changes in laws, policies, and carriers to fish new streams for profit.


Dumping a person with a 22 year history of Multiple Sclerosis, or finding a loop hole to cancel or avoid payments seems to be the “principal” of the business of US healthcare insurance. That the person in question has serious cognitive challenges is like blood in the water to sharks. … The caregiver is the ONLY line of defense.  


Medical insurance and prescription plans are REAL issues when living with MS. Multiple Sclerosis is a chronic illness, Patti has been diagnosed for 22 years. Insurance plans change, carriers change, employment changes, life changes – but MS progresses. Medical needs increase.


Medical and prescription insurance plans turn even the simplest change into a war. The anxiety, the worry, the increasing money, and exponential increases in time devoted to this one area devour us.


  1. I'm so glad that your wife has you for this situation. It is like blood in water for sharks! And it's not right....and it doesn't even seem to be legal! But sadly enough, it happens and will continue if no one will stand up about this. With all of this time that I have on my hands, thats what I think about, what can I do to give my illnesses a voice? Like ms and fibromyalgia. They seem to be ignored. If I can figure it out...I'll let you know! :o)

  2. ((((((((((((((((((((((((HUGSTOYOU))))))))))))))))))))))I hate to see you have to go through all this medical stuff.I know its got to be so hard for you.But,I know yoi wll never stop,because you love your wife so much.You are a blessing to Her.Have a nice day.

  3. Keep on fighting Patrick.  It's sad that there's the hassle of medication affordability for any illness. ((((hugs for the frustration of it)))). Rache

  4.  I hate hate hate fighting with insurance companies.  Hope you once again defeat them.  


  5. so true:) my sis is having a awful time with insurance grrr stupid people come live in her shoes for one day. have a good week



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