Sunday, March 27, 2011
butterfly effect MS parenting
Almost 20 years ago, a fellow pre-school parent introduced herself and asked if I could help her understand living with Multiple Sclerosis as a family. She was a psychologist treating a 35 yr old patient and felt her patient’s childhood and teen years raised in a family decades earlier with a parent with MS could be a factor in her patient’s adult mental health challenges. There were no professional resources on this topic.
So it seemed providential while preparing this second part to the butterfly effect entry to read in the Washington Post, A parent’s multiple sclerosis can take heavy toll on children
“As a teacher, Levenson came across other children who had parents with MS and who reminded her of herself at that age. She said they were “battling feelings of isolation, embarrassment and anxiety, and the overwhelming sense that no one else understands.”
The butterfly effect of a Multiple Sclerosis diagnosis impacts more than caregiving, before all else - children.
“MS can be a very frightening thing for anyone to deal with in the family but especially for children …
… it can be physically demanding on a child if a parent is unable to walk properly and has to use a wheelchair ...
… If a parent can’t feed themselves very well the child maybe brought in to help … embarrassing and almost a role reversal really with the child becoming the parent and the parent becoming the child ...
... Cognitive problems in a parent can be very frightening. If a parent isn’t able to think properly or plan ahead … he or she can behave in a way which … does not appear to be in the best interest of the child ...
... There are many, many emotional stresses upon children. There are positive gains for children of MS and all the research shows that it isn’t necessarily a bad experience at all in the long term. Just as many, if not more, children are coming out of this experience having benefited from it in a strange way than there are actually who have been hurt by it in some way.” MS and Children (2008) from the Multiple Sclerosis International Foundation
related - butterfly effect MS caregiving
- ► 2013 (65)
- ► 2012 (88)
- ▼ March (9)
- ► 2010 (114)
- ► 2009 (93)
- ► 2008 (127)
- ► 2007 (131)
- ► 2006 (153)
- ► 2005 (152)