Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
Up Your Troubles in Your Old Kit-Bag, and Smile, Smile, Smile"
was not a MS friendly afternoon with temps sweltering at 94°F (34.4°C) and we
had been invited to a graduation party by Patti’s niece and her boyfriend’s
let me give a shout out to the Heckendorn family, your accessible home and hospitality
‘in our world’ was so much more than appreciated.
Phenomenon seemed suspended as Patti was unaffected for almost 3 hours outdoors. Yes,
her NMSS keck cooler helped plus the fan someone positioned near our table
blowing gently across Patti … frankly sometimes
I gawked in disbelief.
years these rare brief suspension of MS symptoms always create a MS time travel
moment. Nothing changes Patti’s physical dependence but an ‘ascendant’ Patti
engaged and enjoyed the party.
when feeding her I noticed MS dysphagia symptoms were asleep and not affecting chewing
When ‘MS speech’ finally broke through jumping into a pause in her brother’s toast …
it was a sweet remark to make. Personally finding a bowl of 'atomic fireballs' on the desert table was the pièce de résistance.
when lung cancer pushes multiple sclerosis up a hill, there is a smile waiting
at the top.