"Pack
Up Your Troubles in Your Old Kit-Bag, and Smile, Smile, Smile"
Saturday
was not a MS friendly afternoon with temps sweltering at 94°F (34.4°C) and we
had been invited to a graduation party by Patti’s niece and her boyfriend’s
family.
First
let me give a shout out to the Heckendorn family, your accessible home and hospitality
‘in our world’ was so much more than appreciated.
Uhthoff's
Phenomenon seemed suspended as Patti was unaffected for almost 3 hours outdoors. Yes,
her NMSS keck cooler helped plus the fan someone positioned near our table
blowing gently across Patti … frankly sometimes
I gawked in disbelief.
Over the
years these rare brief suspension of MS symptoms always create a MS time travel
moment. Nothing changes Patti’s physical dependence but an ‘ascendant’ Patti
engaged and enjoyed the party.
Even
when feeding her I noticed MS dysphagia symptoms were asleep and not affecting chewing
or swallowing.
When ‘MS speech’ finally broke through jumping into a pause in her brother’s toast …
it was a sweet remark to make.
Personally finding a bowl of 'atomic fireballs' on the desert table was the pièce de résistance.
Personally finding a bowl of 'atomic fireballs' on the desert table was the pièce de résistance.
Sometimes
when lung cancer pushes multiple sclerosis up a hill, there is a smile waiting
at the top.
--
Patrick Leer
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
Thank you for sharing your lasting love story.
ReplyDeleteThanks Judy it was a rare exceptional day living with MS
DeleteThe accessible accommodations sound amazing -- weren't you the lucky ones. So glad the day went well.
ReplyDeletePeace,
Muff
Thanks Muff, WE ALL deserve good day every once in a while. :)
Delete