Following up on yesterday’s a New American Gothic entry I wanted to share a recent entry from another AOL journal:
“…We do not become sudden lepers who need to live on the outskirts of town. We do not want to be untouchable. … “ , says so much – please take the time to read and think.
TO CARE, I look at in this journal from the caregiver perspective. Patti can no longer take care of herself. Christina’s entry about her feelings and MS is a rare insight.
‘On our patio’ as a caregiving pair our feelings are really no different. MS progression has simply robbed Patti of ability to hold or retain those feelings or memories. As the caregiver I do have to choose to stir the cauldron and remind Patti of the injustice or create as safe and enjoyable family time together as possible. It's always kind of weird.