Across the cognitive universe from the previous FiOS entry to Patti’s world, I was greeted by “Thank God you’re here. I was so bored!” when I picked her up from her care facility for dinner and an evening at home tonight.
Yes, such a greeting tugs at the heart strings. Second guessing yourself never ends.
I have learned, however, to take the time to discover what “really” has been happening in her day because her greeting though poignant is a 'knee jerk' verbal response.
For example, Patti’s afternoon hours today had been occupied with bowling, Texas hold-em poker, a visit from her parents and trivia pursuit game, and some activity called parachute popcorn. Yet Patti could remember nothing.
Memory loss can create a different kind of boredom. You can occupy Patti non-stop but if she cannot remember it then is she, or is she not bored?
It is the kind of question that borders on the proverbial query, does a tree make a sound if it falls in the forest and no one hears it. Except Patti is not ‘rhetorical’.
Living with Multiple Sclerosis as a family, it is not unusual on any given day to find ourselves drifting across the cognitive universe.
Caregivingly Yours, Patrick Leer