Monday, October 24, 2011
how do you measure the years
A Multiple Sclerosis Blogger who uses poetry as her medium recently wrote
…the career you left
how much money you have spent
the friends that you miss…
In the ‘now’, MS symptoms of memory loss and cognitive impairment cloud Patti’s thinking of …
While I can remember for us both, can anyone really remember the intangibles of life for another?
Maybe our time with MS is better told as then and now?
Then there were only two main types of MS, now there are four.
When Patti was hospitalized with her first major MS exacerbation US troops were busy invading Panama while Iran and Iraq warred between themselves in the Middle East.
Our story preceded disease modifying drugs for MS. None existed then, today there are 6. Patti’s neuro tried to get her into the original Betaseron FDA trials however she was rejected as ‘too progressed’ – she had foot drop.
Someone named Bush has been President of the United States for 12 of the 22 years I have been a MS caregiver.
Our MS story predated the home computer age. We went to our local public library to read the New England Journal of Medicine to research and learn about MS.
Then the National MS Society called the debut of their major fundraising program the “MS Walk”, now it’s called “Walk MS”. Over the 22 years they have raised $623 million nationwide.
Then “Rain Man” won the Oscar as best picture, this year, “The King’s Speech” - interesting bookends of challenges as art.
Then we could take scenic drives through Fall foliage, now with progression of MS visual impairment – well we just enjoy it differently …
… on wheelchair accessible trails with ‘someone’ throwing piles of leaves into the air so they fall around us.
“In daylights, in sunsets
In midnights, in cups of coffee
In inches, in miles
In laughter, in strife
In five hundred twenty-five thousand six hundred minutes
How do you measure a year in the life?”
“Seasons of Love” RENT
Caregivingly Yours, Patrick Leer
web site: caregivinglyyours.com
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