Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
the forest and wilderness come the tonics and barks which brace mankind. ” Henry
1 year anniversary of lung cancer surgery two weeks ahead, I found myself glancing
back a year to the Caregivingly Yours entries written a year ago while I was still
concealing my diagnosis, alone, afraid and writing to leave a voice behind.
Saturday Mar 2nd 2013 seemed like an ideal day for a kind of 1 yr anniversary Super 5K walk
with my daughter around Wildwood Lake. I say super 5K because the main park
loop is 3.1 mile or 5 K but we opted to add in the majority of side trails.
with an acute health issue of my own this past month it seemed homeopathic to
inhale “the tonics and barks that brace mankind”.
people might never see Multiple Sclerosis because the general population has
<1% chance of having MS … Additionally, of those diagnosed with MS the
majority may have symptoms “invisible” to strangers. That Ann Romney and Patti share the same diagnosis appears inconceivable.
daughter always remarks how whenever she brings up that her Mom has MS, she
always hears someone say that they have an aunt or know someone with MS who is "just fine".
society learns a new word, and I paraphrase Mr. Rogers, “can you say sequestered?”. Few have any idea how much living with severe
MS as a family for 23+ years has been a life sequestered.
mainstream media may be biased, social media on the other hand is misleading
because it portrays only the story of those able to post on line. Unless a caregiver
continues to share the story, people like Patti with severe MS disappear unable
to write or even remember their life.
it was also Theodor Seuss Geisel’s (Dr. Seuss) birthday and I found myself
smiling as surrounded by trees I could hear the echoes of both the Lorax and my
post flatined entry