Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
you monitor caregiving in the care facility era? A mega sized wall calendar
keeps it ‘in my face’ every time I enter my kitchen. Glancing at it Sunday I was
struck by the single outing with Patti last week, far off my norm of 3 outings
was a little busy with my own lung cancer health concerns, lung junk vs lung cancer. My mother’s voice echoes in my head, "is that your reason or your excuse?"
with Patti’s Multiple Sclerosis dementia are never boring. While I have no lung
cancer in her 'dementia world', buckling her in our wheelchair accessible van I coughed
briefly only to have her remark “you sound terrible.” I know she means nothing
but it unleashed an anxiety worm in my head.
laughed as I paused while pushing Patti’s wheelchair by our lawn gargoyle. He
appeared so sad playing his flute to the last bump of winter snow. The anxiety worm whispered “your last snow”.
Returning Patti she was sooo slouched in her chair I considered asking aides to use the Hoyer Lift. Those anxiety worms have me more focused than usual on 'cheating death', plus Easter Week isn't helping.
If I'm cheating death than full speed ahead. Initiating the one person unassisted transfer it was not the prettiest maneuver but Patti end up in bed safely.
this morning to a couple inches of snow blanketing our neighborhood was a