Juggling
spouse caregiving for Patti’s progressing Multiple Sclerosis symptoms while
basically single parenting our daughter from infant to adult has been more like
trying to juggle while running back and forth between two ends of a
teeter-totter. Good times and bad times, hopefully my antics were more amusing
than displeasing.
Now
juggling spouse caregiving for Patti’s MS dementia and more, as her advocate,
through the care facility era and my own diagnosis of lung cancer for the past
15 months it’s more like running back and forth between two ends of a cruel
joke.
Anyway
as the last bumps of Monday’s snow melted away, I decided to take Patti out for
a lunch outing. Plowable or shoveable snow can make deploying our wheelchair van
ramp complicated so the extra day wait was optimum. Plus I like to mix up my times
for visiting and outings from Patti’s care facility since Patti is unable to
advocate for herself or even remember what goes on at different times of day. As her advocate I try to adhere to the maximum, 'it's not what you expect it's what you inspect.'
Best of
all I have no lung cancer when I am out and about with Patti. Her MS dementia
symptoms have erased my diagnosis.
We
headed to our favorite Helena's Chocolate Café & Crêperie. Where else can
we order a ‘not too hot’ hot chocolate in an adult sippy cup? (aka to go cup) Besides
everything being so yummy, Patti had a chocolate strawberry crêpe. The staff is always so accommodating of Patti’s Multiple
Sclerosis symptoms.
Saying
our goodbyes I could hear the lyrics to the Cheers Theme Song playing in my
head …
“Making
your way in the world today takes everything you've got.
Taking a
break from all your worries, sure would help a lot.
Wouldn't
you like to get away?
Sometimes
you want to go
Where
everybody knows your name,
and
they're always glad you came.”
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
care facility multiple sclerosis caregiving
Sounds like a wonderful outing, and I'm sure that Patti enjoyed it.
ReplyDeletePeace,
Muff
Thanks Muff! It's the little things like serving Patti not too hot hot chocolate in an adult sippy cup (or a to go cup) that makes the difference between an outing and a wonderful outing. :)
DeleteNever thought the Cheers Theme Song would bring tears but put in this context it is emotional for sure.
ReplyDelete