Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
MultipleSclerosis.net "Who I Am and How I Got Here"
to MultipleSclerosis.net, the newest resource for patients and caregivers
living with multiple sclerosis.”
I was invited to blog from a MS caregiver’s perspective by some interesting
people with Health Union LLC for a new Multiple Sclerosis website, MultipleSclerosis.net and it's associated Facebook
MultipleSclerosis.net we empower patients and caregivers to take control of
Multiple Sclerosis by providing a platform to learn, educate, and connect with
peers and healthcare professionals.”
I’m kind of honored that our story is the featured blog to kick off NMSS
Multiple Sclerosis Awareness Week as I have long argued that people with advanced or severe
MS such as Patti are swept under the rug.
Curiously while Caregivingly Yours, MS Caregiver has nearly 10,000 pageviews per month according to Google Analytics the National Multiple Sclerosis Society (NMSS) has never included 'our story' in their publications or on-line presence.
Believe me I understand that severe MS is scary especially to the newly diagnosed but to exclude it from the dialogue of MS is even scarier.