Recently
I was invited to blog from a MS caregiver’s perspective by some interesting
people with Health Union LLC for a new Multiple Sclerosis website, MultipleSclerosis.net and it's associated Facebook
page.
“At MultipleSclerosis.net we empower patients and caregivers to take control of Multiple Sclerosis by providing a platform to learn, educate, and connect with peers and healthcare professionals.”
“At MultipleSclerosis.net we empower patients and caregivers to take control of Multiple Sclerosis by providing a platform to learn, educate, and connect with peers and healthcare professionals.”
Frankly
I’m kind of honored that our story is the featured blog to kick off NMSS
Multiple Sclerosis Awareness Week as I have long argued that people with advanced or severe
MS such as Patti are swept under the rug.
Read Who I Am And How I Got Here… from MS.Net
Curiously while Caregivingly Yours, MS Caregiver has nearly 10,000 pageviews per month according to Google Analytics the National Multiple Sclerosis Society (NMSS) has never included 'our story' in their publications or on-line presence.
Believe me I understand that severe MS is scary especially to the newly diagnosed but to exclude it from the dialogue of MS is even scarier.
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
care facility multiple sclerosis caregiving
Tell it like it is, Patrick. Advanced MS may be scary, but pretending it doesn't exist doesn't make it go away. Although I wish it did…
ReplyDeleteYou are a great advocate for Patti and others who are not able to speak for themselves!!
ReplyDelete