We went to see The Buc Hill Aces featuring Brian Lockman at the Cornerstone Coffeehouse in Camp Hill, performing “songs you probably won’t hear anywhere else”. <grin> We’ve known the Lockmans since we moved up here, our daughters attended high school together. I meant to ask why the group is named after an old Pittsburg Pirate pitching staff, but that will have to wait. After all what’s in a name?
Amazingly Patti found herself in the same audience with one of her cousins – JoAnn, Patti thinks. Prompting me to remind her that “it’s a small world” after all (and begin singing the dreaded song <grin>).
Fortunately she and MS fatigue could be bribed by a Latte and a brownie. And there was a chance to sing, after all, along with the refrain to an ancient Bob Dylan song, “Gospel Plow.” Definitely one song you probably won’t hear anywhere else. Brian's music and banter was perfect for the intimate environment ... and most important a fun evening out!
Outings and such never diminish the necessity for caregiver vigilance. I just find it boring to dwell on it in reporting all the time. Also over 20 years I’ve become very good at my job and can balance caregiving within other environments - to a casual observer it may even appear masked. However on the other hand I don’t want to paint a false picture to any reader.
Any outing has at risk situations. MS related symptoms of dysphagia demand attended eating at all times, including snacking. I have to be her sentinel to compensate for her visual impairment, memory loss, and mental confusion. Unattended Patti can place herself in harms way in the blink of an eye, most dangerous are choking or falling.
Falling? How can someone fall out of a wheelchair? More easily than can be imagined. Wednesday evening I received an embarrassed call from her care facility informing me Patti had slid out of her chair. Law requires they report every such incident. Even at a 24/7 care facility with staff in abundance and an alarm on her chair, she still manages to thwart the best of defenses, if given that “blink of an eye”.
In a social environment, a caregiver has to turn up the sentry radar. There is unseen caregiver work behind any successful outing.