Showing posts with label Medicaid. Show all posts
Showing posts with label Medicaid. Show all posts

Monday, July 22, 2013

Plan Now For Changing Care Needs

Wow! There is nothing like a lung cancer DX to erase whatever I was doing  ...

I had just written an article for MSFocus magazine on ironically 'plan now for changing care needs' when lung cancer entered my world in Dec 2011 and I forgot to even share the article from their Winter 2012 issue ... that is until I was recently cleaning up. 




"...More importantly, the plus is that Patti is secure, safe, nearby, and has 24/7 care the rest of her life. Some days, I have to keep reminding myself of that positive outcome. And when you add it up. it is an extraordinary safety net."
-- 
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/

Friday, April 27, 2012

MS Caregiving - reframe your idea of normal


The most important message is that you may have to reframe your idea of normal,” 
Kimberly Koch, Vice President, Programs & Services, National MS Society

For the first time in over 22 years I was frankly speechless as I read the final paragraph of Multiple Sclerosis Caregivers 2012.
“…In summation, with the combination of the duration of care, the prevalence of mental confusion, and the high probability of long-term care placement, support to the family caregiver of someone with MS seems to rise to a critical level….Proactively reaching out to them with support will help, not only the caregivers, but the care recipients, and ultimately the country, as well.”
Someone somewhere finally gets it!

This is such a leap contrasted to decades of being told by MS organizations that less than a quarter of people diagnosed with MS will ever need a wheelchair that at the risk of hyperbole it may be comparable to the world is flat vs round.
More from National Alliance for Caregiving (NAIC) “Policy Implications of the Study”

"This study sheds new light on several new aspects of family caregiving for someone with MS. In particular:
• The long life cycle of the disease suggests that the total number of years one serves as a caregiver will be much, much longer than caregivers in general …
• Caregiving for someone with MS has a substantial negative impact on the family’s financial situation in 43% of the cases.
• The likelihood of the care recipient going into a long-term care facility within the next ten years was estimated at 40%—with the triggering event being the need for 24-hour care. 

Taken together, these issues create a rather compelling case for caregiver support at Federal, state, and local levels. The ten-year estimate of nursing home placement should be high enough to concern the Centers for Medicare and Medicaid Services (CMS)."

Caregivingly Yours, Patrick Leer 

Sunday, February 19, 2012

when more than homecare is needed Multiple Sclerosis

From Multiple Sclerosis Foundation’s MS Focus Magazine, Winter 2012 (pages 43-45):

_____________________________________
pg 44
_____________________________________
pg 45
Caregivingly Yours, Patrick Leer 


Wednesday, July 13, 2011

politics of caring


When did caring become labeled as ‘entitlement spending’? Safety nets for our own people are what we brawl over? 
"I cannot guarantee that those checks go out on August 3rd if we haven't resolved this issue. This is not just a matter of Social Security checks. These are veterans' checks, these are folks on disability and their checks.” President Obama, July 12, 2011
That sure reads like taking political hostages of people who least deserve to be worried.

People who care for someone or need care themselves represent almost a third of all Americans, yet our unique challenges and situations divide us; some are young, some old, some physically challenged, some mentally, some need attended care, some do not. 
“Taxes are what we pay for civilized society.” Oliver Wendell Holmes Jr.
Politically we are no different than ‘normal’ Americans; some are Democrats, some Republicans, some Independents, some don’t give a damn, some blame military spending, some blame Bush tax cuts. The difference is that for more of us and those we care for; Reagan may be President, or be too overwhelmed with pain or just trying to get through the day with a chronic illness or disability to think bigger.

President Obama is right about one thing - this is not just a matter of Social Security checks. These are veterans, these are folks on disability.
If there is going to be a donnybrook over caring and safety nets for our own people – now is the time to be heard loud and clear.



Avoid the easy to send boilerplate ‘contact us’ forms. With just another click or two you can find their website with email, twitter, facebook, phone numbers and snail mail address.

Remember they have to know you are a constituent. You must include your name and address. Anonymous ranting accomplishes nothing.

Use your own words; it’s your point of view. Try to be courteous but more important specific and to the point. Above all, be heard - now!
Caregivingly Yours, Patrick Leer 
web site: caregivinglyyours.com  

Monday, June 13, 2011

greeking Medicare Medicaid

Email from Medicare & Medicaid Services is usually rather bland and innocuous. So this morning’s adventure into greeking was certainly a different way to start the week.

Centers for Medicare & Medicaid Services
Headline 1
Lorem ipsum dolor sit amet, consectetuer adipiscing elit …

Headline 2
Lorem ipsum dolor sit amet, consectetuer adipiscing elit ...

Headline 3
Lorem ipsum dolor sit amet, consectetuer adipiscing elit ...

You are receiving this message because you subscribed to get email updates from the Centers for Medicare & Medicaid Services (CMS)

Placeholder text? Nonsense Latin? Or perhaps a homage to Cicero? … “Neque porro quisquam est qui dolorem ipsum quia dolor sit amet, consectetur, adipisci velit” . . . "There is no one who loves pain itself, who seeks after it and wants to have it, simply because it is pain” – Now there is a message to SHARE!

Or maybe, just maybe, one day someone may have to click on your computerized medical record or you may need to access some vital medical information and you may read "Lorem ipsum ..."  Beware of Greeks bearing gifts - especially if they are speaking Latin.J
Caregivingly Yours, Patrick Leer 
web site: caregivinglyyours.com  

Wednesday, February 23, 2011

financial planning for family caregivers

Patti and I navigated ourselves (perhaps stumbled is a better choice of words) through the financial forest when we began our journey decades ago. Nothing like this 'free' webinar existed.  

From NFCA National Family Caregiver’s Association:
------------------------- 
Reaching Out for Financial Help

These are a few of the questions you have asked us.

This free webinar will get you answers that you need.

February 24th
2pm - 3pm ET
Register Now. Get Answers.     

NFCA is proud to bring you the first in a new series of free webinars all about financial planning for family caregivers. Our partner, Allsup Inc. , has expertise and exciting ideas on how to make the most of what you have and get more of what you need.

To attend the free webinar, all you have to do is register. Once you register, you will receive instructions on how to join the webinar on line. Its that easy. Just click here.

Register Now. Get Answers. It's Free 

We hope you will join us. We know that caregiving is hard enough without having a hard time finding answers to your questions.
------------------------------------

I’d especially like to thank Lisa Winstel with NFCA for taking a moment to step from cyberspace into an ol’ fashioned phone call to confirm details and NFCA affiliation.

Caregivingly Yours, Patrick Leer 
web site: caregivinglyyours.com 

Thursday, November 18, 2010

Financial Help for Caregivers

From November/December 2010 Newsletter Centers for Medicare and Medicaid Services ...
 Financial Help for Caregivers
"There are several programs that can help you save money on Medicare premiums, drugs, or basic living expenses. Make sure you explore these options:

   There are programs that help millions of people with Medicare save money each year. States have programs for people with limited income and resources that pay some or all of Medicare’s premiums and may pay Medicare deductibles and coinsurance.

   You may be able to get extra help to pay for the monthly premiums, annual deductibles, and co-payments related to the Medicare Prescription Drug program.

  Many states and the U.S. Virgin Islands offer help paying drug plan premiums and/or other drug costs. Select a state or territory below then click “Search” to see if any programs are available in your area.

Explore national and local charitable programs with Benefits Check Up, created by the National Council on the Aging (NCOA)
   "As of Thursday, November 18, 2010 we have helped 2,645,136 people find over $9.1 billion worth of the annual benefits they deserve."

Visit GovBenefits.gov to learn about government assistance programs
   What is Benefits.gov? The official benefits website of the U.S. government - Informs citizens of benefits they may be eligible for - Provides information on how to apply for assistance

Apply for Medicaid
   If you can't afford to pay for medical care right now, Medicaid can make it possible for you to get the care that you need so that you can get healthy and stay healthy.
  
... of course, this newsletter was likely prepared before recent elections, and well politics can leave programs like leaves twisting in the wind  …

"Previewing the partisan healthcare battle to come next year, the Obama administration's new head of Medicare and Medicaid squared off against irritated Republicans on Capitol Hill for the first time Wednesday in a renewed debate over the healthcare overhaul …"

Caregivingly Yours, Patrick Leer 

Thursday, December 18, 2008

caregiving: nursing home compare

Today the Centers for Medicare and Medicaid Services (CMS) unveiled their new 5-star rating system for nursing homes and care facilities.

NURSING HOME COMPARE

Exhaustive information has always been available through CMS however, this works much like the more consumer familiar restaurant or lodging 5-star systems.

After checking it out this morning, I must offer applause for user friendliness and simplicity.

However, I also must also caution that searching and deciding on 24/7 care is NEVER simple. Certainly use this new tool as a start.

Then visit, visit, and visit again. Your impressions and what you actually see and feel is far more important than data. Care is always about people.

Caregivingly Yours, Patrick Leer
web site: http://caregivinglyyours.com/
videos: http://www.youtube.com/daddyleer
musings: Patrick Ponders ...

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