Since my
own My Lung Cancer Odyssey leapt from Stage 1 to Stage 4 recently, I am finding
each morning more like looking at a surreal gate.
Which may
or may not have to do with the life fact that I have cared for my wife’s severe
Multiple Sclerosis for a quarter century and my own lung cancer for only 17
months.
Oddly
this morning reflected in the dawn showers I found myself back in the summer of
1988. Our world as a young family starting out was 13 months from exploding.
Patti had been diagnosed with ‘probable MS’ in 1985 but the minor symptoms were
receded and forgotten.
We were
sharing a vacation house with Patti’s brother and sister in law and their
daughter at Nag’s Head, NC.
My brain
was stabbed awake just before dawn and I gave up on sleep. Unlike migraines,
with my Cluster Headaches light, motion, and activity always helped soothe.
Soooo
why not carry our daughter down to learn to greet dawn at
the beach. 5 months old is never too young.
I also found
myself wondering about parents? I cannot even imagine what it would feel to be
a parent when your adult child’s life explodes from a monstrous diagnosis like
MS to a dependent life which you cannot fix - just hold and soothe. Life really
is told in minutes of care.
Patti’s
Mom, Gloria Decker celebrated her 80th birthday today. Patti safe,
secure, and attended was in the care facility. How aware or even wanting to
participate with her siblings was doubtful. MS has a way of flipping life with
age. Young adults cannot remember, cannot participate.
Gloria
has been a mainstay for Patti, always visiting always encouraging, loving
unequivocally.
We wanted
to do something special that even Patti could see and enjoy. …. and putting our
heads together we decide to try and create a ‘milestone
picture’ featuring 8 firework fountains for each milestone year of 80 years of a
caring life.
Living with MS as a family creates a special kind of family.
Living with MS as a family creates a special kind of family.
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
I have always found it amazing that people with MS and caregivers can communicate their feelings so effectively with one simple phrase: "MS Sucks".
ReplyDeleteIt is with this spirit that I hope you can appreciate my response to hearing about your recent "upgraded" cancer status:
"Dude, that sucks."
Matt, thanks!
DeleteLooks like a great birthday memento! [love the Phillies banner on the door!]
ReplyDeletePeace,
Muff
Thanks Muff! With MS symptoms and all it always takes a stretch with creativity to make 'special' work. Patti's folks are die hard Phillies fans. :)
ReplyDelete