Wednesday, May 29, 2013

World MS Day is ALSO about MS caregivers, families, and friends

The fear of being left all alone with a disabling illness such as Multiple Sclerosis to cope in a hard and scary world I imagine is more than universal.

Then on the other side is debate over sacrificing your own life as a caregiver. Some argue morality is a code of life not death. Your first moral duty is to take care of yourself.

Believe me after a quarter century no one gets both. IMHO it has nothing to do with philosophy or fears; there really is no right or wrong answer. … It’s about what you are made of. The person diagnosed with MS has no choice. Caregiver, friends, and family on the other hand is all about choice.

Today is World MS Day 2013TWO million people around the world are living with Multiple Sclerosis. Add in their caregivers, families, and friends = mind boggling numbers.

Christ’s cry from the cross, "My God, My God, why have You forsaken Me?" has kept men and women of faith busy for centuries. … While those of us with feet of clay simply try to live with chronic illnesses like Multiple Sclerosis as family and create the best of possible lives.

Some will walk away, some will drift inside themselves and some may actually make things worse by staying with their negativity. I cannot fault any person when medical science itself has left MS in the dust of the laboratory floor.

I’m no believer in deep thinking over intuition, vows, promises or whatever. To my knowledge Patti's first huband has never even cared and hell's bells those two were in love. Marrying before God and man to all the right vows, love and all the bells and whistles only to have domestic violence end their marriage. Evil does not always masquearde as a disease.

We have no vows nor promises between us only a belief in the words of the Prophet "Give your hearts, but not into each other's keeping. For only the hand of Life can contain your hearts. Stand together, yet not too near together: For the pillars of the temple stand apart, and the oak tree and the cypress grow not in each other's shadow.”

I honestly believe it comes down to caring. MS caregiving will become physical care with lifting transferring and more. Do I have true grit?

As always my thanks to …
by Patrick Leer—May 27th, 2013

Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @

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