Earlier
this week I arrived at Patti’s care facility to take her for a push and roll
and some dinner. Instead I was surprised to find her sleeping.
Reflectively
I put my hand to her forehead to check for a fever. Her eyes blinked open, “I
am trying to sleep because I feel like shit - I do not have a fever, you idiot
man”. … Hi there and nice to see you too Patti!
Laughing
I go get her a cup of ice and ginger ale with a flexible straw. Playing around
with bed adjustments we settled in to watch the end of “Ellin” followed by “The
Simpsons”.
Glancing
above her bed I noticed the oversized room thermometer is near 80˚F(27˚C). May is the time of year Uthoff’s Phenomena annually
rears its pain in the butt head.
Opening
her windows, her room cools rapidly toward 70˚F(21 ˚C), assisted
dinning staff detours her tray to her room and I become her personal room
service waiter as she enjoys eating dinner to the “The Simpsons.”
Living
with MS as a family it’s not always about putting my hand on Patti’s forehead
but checking the room and outside temperature.
Again, I
would like to thank MultipleSclerosis.net for inviting me to share longer
versions of our story:
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
caregiving care giving care facility
I just ran into that myself. Driving to DE, the a/c was on, BUT the sun was coming through my side and front window. My legs were so hot when I went to get out of the car, I couldn't move. I mean could. not. move. Fortunately, my husband came to my rescue and grabbed the transport w/c from the trunk. Heat can such a sneaky demon.
ReplyDeletePeace,
Muff
Muff! Sooo glad your husband was there. Uthoff's Phenomena take a team!
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