Trying
to apologize she tells me her memory sucks and she did not notice. I can hear
our daughter smiling “I told you so”
Sooooo I
drive around stopping to get her some of her favorite finger foods, she laughs
heartedly at the audio book we are listening to, and bring her home where she
can enjoy her ciggies on our back patio and position her bowl/plate on her lap.
After
about a handful of bites she wants me to take the plate because she’s tired and
just wants to go to bed. .. sigh!
MS
caregiving can be confounding no matter how long you have been doing it. Weather
was too cool for Uthoff’s Phenomena to be in play. I stall her for a couple
more minutes as she devours a Popsicle and then we are off.
Later
Monday evening I read on Facebook “Patrick shares the most challenging MS
symptoms from a caregiver's perspective: http://multiplesclerosis.net/?p=796”
As
always I am thankful to MultipleSclerosis.net for inviting me to share the
longer versions of our story
Posted
by Patrick Leer—May 6th, 2013
in this case reading the time warp entry reminds
me of what I am grateful for. The care facility era of living with MS as a
family is less physically demanding on the spouse caregiver. Less stressful and more assistance for Patti. … and most of all
as Patti once raised herself “what if” something happened to me she never ever
wanted our daughter to give up her life to be her caregiver.
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
care facility multiple sclerosis caregiving
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