Sunday, September 26, 2004

Depending Catholic

Sundays long, long ago were about church. “Living with MS”, as I’ve remarked before, I’ve become a “Depending” Catholic. It “depends” on whether I am speaking to God or not that week. Living with what MS has done to Patti and all around her, I have issues with the ‘omnipotent one’.

Recently discovering A Prairie Home Companion with Garrison Keillor, maybe his fictional Our Lady of Perpetual Responsibility brought back fond memories of long ago. Or perhaps the release to DVD of Mel Gibson’s The Passion of the Christ made me reflective. It just seemed pop culture was sending me omens to cut the ‘omnipotent one’ some slack this Sunday.

Nothing new there today except the Catholic Church still needs more money. After giving that old time religion a chance we moved on to spending some time with Patti.

Patti has recently been wanting some type of portable music player. She has always become tangled up in any kind of headphone type cassette or CD player. We bought her a radio built into a set of headphones. NO WIRES, no additional unit, JUST HEADPHONES. We’ll just have to see how it works out. Spasticity, visual impairment, and mental confusion really prevent her from using the simplest and most convenient portable music devices that most people wouldn’t think twice about using.

We finished the day with a trip to the movies. Choosing a movie that Patti can follow and also that can keep her attention can be difficult. We rolled the dice on “Sky Captain & the World of Tomorrow “. Patti thoroughly enjoyed the film and chuckled throughout at the banter of the characters.

We should have quit while we were ahead, because stopping to eat afterwards Patti suffered one of her obsessive bouts of vomiting following dinner. It remains one of the weirdest and more socially affecting of MS related problems. She can go weeks without a problem, and then out of nowhere …  Of course, “living with MS” you just learn to make sure you always have a bag with you at all times.

Then I come home and respond to emails with an attorney and dig yet deeper into old records over this looming insurance cloud.

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