Is MS supposed to land you in a care facility by the age of 48? Are you supposed to loose the ability to control most aspects of your body and then your mind?
18 years ago it began for Patti as an intermittent numbing tingling in her fingers that went away on its on. At the time, hours and hours of neurological testing could at best rule out everything else, leaving the infamous diagnosis of last resort, probable MS. Following her first major exacerbation her diagnosis was promoted to MS.
No treatment has been left unturned either traditional or alternative. Weekly RX Avonex shots were no more successful or unsuccessful than an alternative medicine bee venom therapy of 24 bee stings every other day for a year.
MS does as it pleases. Or in Pattis own words, MS sucks!
Many well intended publications publish inspirational stories of personal courage and apparent success. Hope in living with MS is critical and needs to be communicated.
Sadly the other side is too often left untold. There is equal courage in those many people with MS who struggle daily in a loosing battle. They fight to live on whatever terms and level is left to them. With daily eroding physical and mental abilities it is a fight against all odds.
Dont buy into any theory of what MS is supposed to be.
By sharing maybe we can tell one family's story of the other side you dont read in MS publications. Silence doesnt help anyone.