The link below is WHY in part we started this journal. While there is nothing wrong with optimistic thinking sometimes I am left with my mouth hanging open... "Quality of Life for MS Patients On Par With Those Without It" ?? WebMD with AOL Health - Most With MS Still Enjoy Good Quality of Life Of course like everything with MS, everybody's story is different. As a caregiver for chronic progressive MS for 18 years I don't know if I would agree about Quality of Life being on par with those without ?? However I will be seeing Patti today and will be sure to ask her opinion. This should be choice. <grin>
Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
Monday, May 31, 2004
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2004
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May
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- Memorial Day
- Quality of Life
- from Patti's Mom re: Saturday
- NYC 5/29/04
- Runaway Chair
- Hedonism VS Sacrifice
- The MS War in Summary
- Swank Diet
- Cytoxan
- Prednisone
- Avonex
- NEW set of wheels!
- Thursday outing
- Betaseron
- HOPE fuels the fight
- Bee Sting Therapy
- Alternative Medicine
- Nurse Practitioners
- Blood in urine?
- Medicaid application
- Sunday in the park
- An 'able bodied' day
- Ice cream therapy
- Visiting
- Towering paper
- Medical assistance
- What about older entries?
- MOTHER'S DAY
- MS Ribbon of Hope
- Visitors and more visitors
- Communication
- Windmills and Dragons
- Visitors
- Low Rider
- Accidents - what a way to start a day ...
- Age discrimination?
- Elder Care Attorney
- Knowledge is power ...
- Is MS supposed to ...
- from Patti's Mom
- Family visiting
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May
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