Picked Patti up for a Memorial Day cook out at her parents house with family and friends.
I noticed when signing Patti out that her brother and family had signed her out on Sunday for a afternoon in the park and a visit to Dairy Queen.
Patti could not recall any of the weekend visits.
Sadly Patti had a bowel accident at dinner which always impacts any event.
Driving back to her care facility I asked her about quality of life article mentioned in the following entry. She stunned me by agreeing that her quality of life isn't that bad. She has shelter and food. All she enjoys is watching movies and eating. People are kind enough to take her to movies and she gets fed. -- I'm still realing from that response.
Can my perception of quality of life be that different? I feel stuck in one of those parallel universe warps I mentioned many entries ago.
Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family ... a ‘warts and all’ picture of living with MS.
Monday, May 31, 2004
Subscribe to:
Post Comments (Atom)
Blog Archive
-
▼
2004
(230)
-
▼
May
(41)
- Memorial Day
- Quality of Life
- from Patti's Mom re: Saturday
- NYC 5/29/04
- Runaway Chair
- Hedonism VS Sacrifice
- The MS War in Summary
- Swank Diet
- Cytoxan
- Prednisone
- Avonex
- NEW set of wheels!
- Thursday outing
- Betaseron
- HOPE fuels the fight
- Bee Sting Therapy
- Alternative Medicine
- Nurse Practitioners
- Blood in urine?
- Medicaid application
- Sunday in the park
- An 'able bodied' day
- Ice cream therapy
- Visiting
- Towering paper
- Medical assistance
- What about older entries?
- MOTHER'S DAY
- MS Ribbon of Hope
- Visitors and more visitors
- Communication
- Windmills and Dragons
- Visitors
- Low Rider
- Accidents - what a way to start a day ...
- Age discrimination?
- Elder Care Attorney
- Knowledge is power ...
- Is MS supposed to ...
- from Patti's Mom
- Family visiting
-
▼
May
(41)
No comments:
Post a Comment